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Trusted Resources for Patients, Families and Healthcare Professionals

This list of resources was co-developed by people with lived experience with the support of researchers and doctors in the Long COVID Web network. We have divided this list into five parts:

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  1. Information for patients and parents of patients to take to their doctors about Long COVID.

  2. Information designed for healthcare professionals.

  3. Where to get support and help – including clinics and other resources.

  4. Other resources – including reading materials, news and media stories.

  5. Some resources to help patients and others get involved in research.

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* This indicates resources for kids and parents of kids with Long COVID.

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 ! This indicates resources related to schools and education.

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 $ This indicates that you may have to pay for (not covered by provincial or territorial healthcare insurance plans, but may be covered by some insurance plans).​​​​​​

 

When posted, this information was up to date. The LCW team will work to keep it up to date as new information comes in. Please write to us at info@longcovidweb.ca if you see an error or if you have a suggestion. We have carefully looked at what we posted to make sure it is relevant to patients, to physicians and to researchers. We have also vetted it for scientific and medical accuracy. Our team recognizes that we cannot include everything, but we did try to find the most accurate and most useful information.

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Stay tuned! We'll share new discoveries here as they come in. And remember Long COVID Web’s goal: Canada without Long COVID. There is hope!

 

Join the LCW Network – by signing up you will receive information about LCW activities, our bi-monthly newsletter, and information about other events, etc. Click the link on the top right of our home page: https://www.longcovidweb.ca

The following list includes evidence-based information about Long COVID and care for people living with Long COVID that may be useful for you and/or to take to your medical care team.​​

 

Symptom Checklist for Long COVID (University Health Network – Updated 07aug2025)

This checklist of clinical symptoms can be completed by patients, research assistants and/or healthcare professionals. UHN clinicians have provided permission to share this resource online.

 

Tools from the Bateman Horne Centre in Murray, Utah (USA):

Several tools (including an information letter for healthcare providers) for patients and professionals to support communication and assessment for multi-system chronic complex disease management, including ME/CFS, Long COVID, and chronic fibromyalgia: https://batemanhornecenter.org/wp-content/uploads/2024/02/Shortlist-of-Tools-for-Care-Management_2.pdf

 

Infographic – visual summaries of LC symptoms (downloadable PDF):

https://hdl.handle.net/1805/25685

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Source: The COVID-19 “Long-Hauler” Symptoms Survey Report, by Lambert, N. J. & Survivor Corps. (2020). COVID-19 “Long Hauler” Symptoms Survey Report. Indiana University School of Medicine.

 

Infographic – visual summary of LC symptoms (downloadable PDF):

http://www.phsa.ca/our-services-site/Documents/Post-COVID%20symptoms.pdf

 

Infographic – visual summary of long-term effects of COVID-19 (downloadable PDF):

https://www.nature.com/articles/s41598-021-95565-8/figures/2

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Source: Lopez-Leon, S., Wegman-Ostrosky, T., Perelman, C. et al. More than 50 long-term effects of COVID-19: a systematic review and meta-analysis. Sci Rep 11, 16144 (2021). https://doi.org/10.1038/s41598-021-95565-8

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University Health Network – Long COVID Clinic Checklist of Symptoms:

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Dr. Angela Cheung has shared her LC clinical checklist of symptoms used at UHN.

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Clinical information and management sheets – in English and French

https://www.inesss.qc.ca/en/covid-19/affections-post-covid-19-covid-19-longue/outil-daide-a-la-prise-en-charge-affections-post-covid-19.html

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Source: The Institut national d’excellence santé et en services sociaux (INESSS), Quebec – scroll down to see English versions – this resource is designed for clinicians and includes resources on general information (June 2022), a management and support tool (June 2022), rehabilitation (June 2023), altered taste and smell (June 2022), cardiorespiratory (June 2022), neurological manifestations (June 2022), and post-exertional malaise (June 2022).

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Long COVID – What You Need to Know (January 2024) – in English and French

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Source: Centre Intégré de Santé et de Services Sociaux de la Montéregie-Ouest.

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World Physiotherapy – InfoSheet on fatigue and post-exertional symptom exacerbation: 

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RECOVER Tip Sheet – Getting Ready to Talk to Your Child’s Doctor

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https://studies.recovercovid.org/pdf/RECOVER-PediatricLongCOVIDTipSheet-ENG-v2.pdf

 

Long COVID Kids * (Registered Charity/International Support Group based in the UK) - Educational toolkit:

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https://www.longcovidkids.org/educational-toolkit

 

Long COVID Kids * (as above) – Long COVID Information Leaflet:

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https://www.longcovidkids.org/_files/ugd/eabf28_c6c4800a71f14abbad17d92e8b1eeea6.pdf

 

Long COVID Kids * (as above) – ‘Pacing Penguin’ & ‘Cautious Tortoise’ posters – practical support to help with managing energy and supporting children with Long COVID.

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https://www.longcovidkids.org/_files/ugd/eabf28_c6c4800a71f14abbad17d92e8b1eeea6.pdf

https://www.longcovidkids.org/_files/ugd/eabf28_ab86649a5dcf4f67bd07a7f4f953c08b.pdf​​

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Long COVID, Episodic Disability and Labour Force Participation - Calls to Action for Government, Employers, Human Resource (HR) Professionals, Insurers and Benefit Providers (PDF).

 

University of Saskatchewan- What is Post COVID-19 Condition (Infographic) https://canpcc.ca/app/uploads/2024/12/What-is-PCC-HCP.pdf

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