Trusted Resources for Patients, Families and Healthcare Professionals
This list of resources was put together by Long COVID patients and parents with the support of researchers and doctors in the Long COVID Web network. We have divided this list into five parts:
-
Information for patients and parents of patients to take to their doctors about Long COVID.
-
Information designed for healthcare professionals.
-
Where to get support and help – including clinics and other resources.
-
Other resources – including reading materials, news and media stories.
-
Some resources to help patients and others get involved in research.
​
*This indicates resources for kids and parents of kids with Long COVID.
​
!This indicates resources related to schools and education.
​
$This indicates that you may have to pay for (not covered by provincial or territorial healthcare insurance plans, but may be covered by some insurance plans).
​
When posted, this information was up to date. The LCW team will work to keep it up to date as new information comes in. Please write to us at info@longcovidweb.ca if you see an error or if you have a suggestion. We have carefully looked at what we posted to make sure it is relevant to patients, to physicians and to researchers. We have also vetted it for scientific and medical accuracy. Our team recognizes that we cannot include everything, but we did try to find the most accurate and most useful information.
Stay tuned! We'll share new discoveries here as they come in. And remember Long COVID Web’s goal: Canada without Long COVID. There is hope!
​
Join the LCW Network – by signing up you will receive information about LCW activities, our bi-monthly newsletter, and information about other events, etc. Click the link on the top right of our home page: https://www.longcovidweb.ca
The following list includes evidence-based information about Long COVID and care for people living with Long COVID that may be useful for you and/or to take to your medical care team.​​
Infographic – visual summaries of LC symptoms (downloadable PDF):
https://hdl.handle.net/1805/25685
Source: The COVID-19 “Long-Hauler” Symptoms Survey Report, by Lambert, N. J. & Survivor Corps. (2020). COVID-19 “Long Hauler” Symptoms Survey Report. Indiana University School of Medicine.
Infographic – visual summary of LC symptoms (downloadable PDF):
http://www.phsa.ca/our-services-site/Documents/Post-COVID%20symptoms.pdf
Infographic – visual summary of long-term effects of COVID-19 (downloadable PDF):
https://www.nature.com/articles/s41598-021-95565-8/figures/2
Source: Lopez-Leon, S., Wegman-Ostrosky, T., Perelman, C. et al. More than 50 long-term effects of COVID-19: a systematic review and meta-analysis. Sci Rep 11, 16144 (2021). https://doi.org/10.1038/s41598-021-95565-8
​​
University Health Network – Long COVID Clinic Checklist of Symptoms:
Dr. Angela Cheung has shared her LC clinical checklist of symptoms used at UHN.
​
Clinical information and management sheets – in English and French
Source: The Institut national d’excellence santé et en services sociaux (INESSS), Quebec – scroll down to see English versions – this resource is designed for clinicians and includes resources on general information (June 2022), a management and support tool (June 2022), rehabilitation (June 2023), altered taste and smell (June 2022), cardiorespiratory (June 2022), neurological manifestations (June 2022), and post-exertional malaise (June 2022).
​
Long COVID – What You Need to Know (January 2024) – in English and French
-
In EN: https://www.santemonteregie.qc.ca/sites/default/files/2024/01/f1-long-covid.pdf
-
In FR: https://www.santemonteregie.qc.ca/sites/default/files/2024/01/fiche1-lacovid-longue.pdf
Source: Centre Intégré de Santé et de Services Sociaux de la Montéregie-Ouest.
​
World Physiotherapy – InfoSheet on fatigue and post-exertional symptom exacerbation:
​
RECOVER Tip Sheet – Getting Ready to Talk to Your Child’s Doctor
https://studies.recovercovid.org/pdf/RECOVER-PediatricLongCOVIDTipSheet-ENG-v2.pdf
Long COVID Kids * (Registered Charity/International Support Group based in the UK) - Educational toolkit:
https://www.longcovidkids.org/educational-toolkit
Long COVID Kids * (as above) – Long COVID Information Leaflet:
https://www.longcovidkids.org/_files/ugd/eabf28_c6c4800a71f14abbad17d92e8b1eeea6.pdf
Long COVID Kids * (as above) – ‘Pacing Penguin’ & ‘Cautious Tortoise’ posters – practical support to help with managing energy and supporting children with Long COVID.
https://www.longcovidkids.org/_files/ugd/eabf28_c6c4800a71f14abbad17d92e8b1eeea6.pdf
https://www.longcovidkids.org/_files/ugd/eabf28_ab86649a5dcf4f67bd07a7f4f953c08b.pdf​​
​
Long COVID, Episodic Disability and Labour Force Participation - Calls to Action for Government, Employers, Human Resource (HR) Professionals, Insurers and Benefit Providers (PDF).
Canadian scientific publications on management of Long COVID:
-
Diagnosing LC in adults (2023): https://www.cmaj.ca/content/195/2/E78
-
Assessing common symptoms in LC (2023): https://www.cmaj.ca/content/195/2/E76.long
-
Treating common symptoms of LC (2023): https://www.cmaj.ca/content/195/2/E80
-
Cardiovascular considerations in LC (2023): https://onlinecjc.ca/article/S0828-282X(23)00303-3/fulltext
​
Canadian Guidelines for Post COVID-19 Condition (CAN-PCC) *Updates will cease on March 31, 2025, unless additional funding is secured.
​
The Public Health Agency of Canada (PHAC) funded Cochrane Canada and the MacMasters GRADE Centre to develop guidelines for post COVID-19 condition (PCC). The team working on the guidelines is a group of 90 people from across Canada, including researchers, health professionals, people with lived PCC experience, and health economists. As at June 2024, there are 11 good practice statements and 5 recommendations available to help guide patients, doctors, and policymakers.
Following a public consultation process, recommendations will be released monthly, with the final set of 100+ recommendations to be published in the fall of 2024.
To view the good practice statements and recommendations in a list view: https://can-pcc.recmap.org/recommendations
CAN-PCC also provides a map of how the good practice statements and recommendations are relevant to different topics and populations, such as for public health, adolescents and healthcare professionals: https://can-pcc.recmap.org/grid
​
A map of Canadian Recommendations for COVID-19, including Long COVID (the ‘Rec Map’), managed by the same team as above: https://covid19.recmap.org
Government of Canada – Information for Health Professionals (in EN and FR):
​
Government of Canada – Information for the Public (in EN and FR):
Ontario Health – Post-COVID-19 Condition: Guidance for Primary Care
British Columbia – Provincial Health Services Authority: Post COVID Recovery Care – Guidance for Healthcare Professionals
http://www.phsa.ca/health-professionals/clinical-resources/post-covid-19-care#Education/resources
Institut national d’excellence santé et en services sociaux (INESSS), Quebec – Information sheets on aspects of Long COVID treatment and care – in English and French:
Institut national d’excellence santé et en services sociaux (INESSS) – Long COVID management support and information tools for clinicians (8 pages) – in English and French:
-
In FR: https://www.inesss.qc.ca/fileadmin/doc/INESSS/COVID-19/Outil_Covid_Affections_postCov19_2022VF.pdf
Centre Intégré de Sante et des Services Sociaux de la Monteregie-Ouest: Long COVID – What You Need to Know (January 2024) – in English and French:
-
In EN: https://www.santemonteregie.qc.ca/sites/default/files/2024/01/f1-long-covid.pdf
-
In FR: https://www.santemonteregie.qc.ca/sites/default/files/2024/01/fiche1-lacovid-longue.pdf
​
Estimated health and economic impacts of Long COVID and benefits of prevention and control: Healthcare costs and effects of post-COVID-19 condition in Canada: Rafferty E, Unsal A, Kirwin E. Healthcare costs and effects of post-COVID-19 condition in Canada. Can Commun Dis Rep. 2023 Oct 1;49(10):425-432. doi:10.14745/ccdr.v49i10a03. PMID: 38481650; PMCID: PMC10936747.
​
Supporting and Managing People with Long COVID in Primary Care: This leaflet, co-produced with the Royal College of General Practitioners, offers a comprehensive and accessible guide to help doctors recognize, diagnose, and manage treatments for Long COVID symptoms.
In this section, you will find a list of dedicated clinics and other healthcare services relevant to Long COVID (available in Canada as at the date noted), national support groups in Canada and elsewhere, information about disability support and return to work guidance, as well as other resources that you might find helpful.
Dedicated Long COVID Clinics (virtual and in-person) and other services in Canada:
​
Publicly available information about dedicated Long COVID clinics in Canada retrieved by LCW is listed below by province/territory; there is one national service by Lifemark. Updated or new information can be sent to info@longcovidweb.ca. This list provides limited information about general clinics or services, such as rehabilitation centres, family practices or neurology clinics, which also provide care for Long COVID patients. Local healthcare professionals may have more current/accurate information about local/regional services and care. Referral forms to take to your doctor or nurse practitioner are included where available. For items listed as private pay clinics, please be sure to ask in advance if they accept insurance coverage.
​
As of November 2024, no information was found regarding available LC clinics in the Territories, Saskatchewan, Manitoba or Atlantic provinces, other than in Newfoundland
​
British Columbia (as at March2024)
-
BC-wide. Post-COVID Recovery Clinic (virtual care). The BC Provincial Health Services Authority provides guidance for LC on self-care and clinical care, and other resources on return to work, finances and other support. Under the clinical care tab, you will find information about how to access services – now organized as a province-wide virtual care network with a central intake/referral process: http://www.phsa.ca/health-info/post-covid-19-care-recovery#Clinical--care​
-
Breathe Well Physio $ (private clinic). Virtual video for all BC residents. Appointments available: https://www.breathewellphysio.com/locations.html
-
Cornerstone Interdisciplinary Long COVID Rehabilitation Program $ (private clinic) – virtual videoconferencing services available across British Columbia; fees covered by most insurance programs: https://cornerstonephysio.com/services/covid-rehabilitation/
​
Alberta (as at November 2024)​
-
Alberta-wide. Alberta Care – a central government resource providing general LC care instructions, list of symptoms, resources, and telephone numbers for general health, rehabilitation and mental health support: https://myhealth.alberta.ca/Health/pages/conditions.aspx?Hwid=custom.ab_covid19_longcovid_inst
-
The myHealth resource includes information about managing LC, call the Rehabilitation Advice Line at 1-833-379-0563.
-
-
Alberta Health Services, Edmonton Zone. Available Resources and Services for this zone are s summarized here: https://www.albertahealthservices.ca/assets/info/ppih/if-ppih-covid-19-edmonton-zone-health-services-long-covid.pd
-
Cornerstone Interdisciplinary Long COVID Rehabilitation Program $ (private clinic) – virtual videoconferencing services available across Alberta ; fees covered by most insurance programs: https://cornerstonephysio.com/services/covid-rehabilitation/
-
Calgary. Breathe Well Physio $ (private clinic), Calgary. Respiratory physiotherapy services – led by Jessica DeMars - https://www.breathewellphysio.com/long-covid.html
-
Calgary. The Other Pain Clinic Inc. $ COVID Rehab & Survivorship Program (private clinic) – providing holistic, drug-free options; LC is listed on their website as a condition they support: https://theotherpainclinic.com/services
-
Calgary. Angela Grace, PhD, Registered Psychologist (private services). $ Dr. Grace offers in-person and online assessment, counselling and advocacy services for adults and children. Contact via her website: www.drangelagrace.com
​
Saskatchewan (as at June 2024)
-
Lung Saskatchewan – a provincial charitable organization (formerly the Lung Association of Saskatchewan) – has assembled information, resources and support information for people living with Long COVID: https://www.lungsask.ca/lungs/lung-diseases/long-covid-0/about-long-covid
-
Breathe Well Physico$ (private clinic). Virtual video appointments for all Saskatchewan Residents: https://www.breathewellphysio.com/locations.html​
​
Manitoba (as at April 2024) – while there are no dedicated LC clinics, there are regional symptom referral pathways. See:
-
Interlake-Eastern Health Region: https://sharedhealthmb.ca/files/services-available-without-a-prescriber-ierha.pdf
-
Northern Health Region: https://sharedhealthmb.ca/files/services-available-without-a-prescriber-nrha.pdf
-
Southern Health-Santé Sud: https://sharedhealthmb.ca/files/services-available-without-a-prescriber-sh-ss.pdf
-
Winnipeg (WRHA + Shared Health): https://sharedhealthmb.ca/files/services-available-without-a-prescriber.pdf
​
Ontario (as at March 2024)
-
Windsor. North Lambton Community Health Centre - Pulmonary Rehabilitation Program. Not a dedicated LC clinic, but a pulmonary service that deals with LC patients. https://eriestclair.rehabcareontario.ca
-
London. St Joseph's Health Care London & Parkwood Institute - Rehabilitation Programs - Post-Acute COVID-19 Program: https://southwest.rehabcareontario.ca
-
Oakville. Oakville Trafalgar Memorial Hospital - Post Covid 19 NeuroRehabilitation Step-Up Program. Not a dedicated LC clinic but provides outpatient services including post-COVID care. https://www.haltonhealthcare.on.ca/services_/28763/s29703-outpatient-rehabilitation
-
Ottawa. Ottawa Hospital - The Rehabilitation Centre - Regional Covid-19 Outpatient Rehabilitation Program. https://www.champlainhealthline.ca/displayService.aspx?id=204267
-
Toronto. University Health Network – Post-COVID Condition Rehabilitation Program, Toronto – referrals accepted from UHN healthcare professionals only: https://www.uhn.ca/TorontoRehab/Clinics/Post-COVID_Condition_Rehab
-
Toronto. West Park Healthcare Centre - Post-Covid Outpatient Service: https://torontocentral.rehabcareontario.ca
-
Toronto. Salvation Army Toronto Grace Health Centre, Pulmonary Rehabilitation Clinic. https://torontocentral.rehabcareontario.ca
-
E-consult service. The Ontario College of Family Physicians has organized an e-consult service for people with Long COVID: https://econsultontario.ca/access-covid-19-related-advice-on-the-ontario-econsult-service-now-including-post-covid-condition-specialties/
-
Cornerstone Interdisciplinary Long COVID Rehabilitation Program $ (private clinic) – virtual videoconferencing services available across Ontario; fees covered by most insurance programs: https://cornerstonephysio.com/services/covid-rehabilitation/
-
Burlington. Pillars of Wellness $ (private interdisciplinary clinic). https://pillarsofwellness.ca/
​
Quebec (as at March 2024)
A network of Long COVID and Lyme Disease clinics, including referral centres and satellite clinics, is in the process of being implemented across Quebec coordinated by the Université de Montréal Hospital – as per a 2022 government plan.
-
A listing of clinics by region in Quebec is available here in English and French (scroll to section ‘Network of long-COVID clinics’): https://www.quebec.ca/en/health/health-issues/a-z/2019-coronavirus/long-covid#c194580
​​
Canadian and International Peer Support Groups:
International support groups organized by national, provincial, territorial and international organizations are listed below. Contact information is available on their websites.
​
National Support Groups
-
COVID Long-Haulers Support Group Canada: a national Facebook group that started in 2020; website includes links to national and provincial Facebook groups: https://www.covidlonghaulcanada.com
-
Quebec Satellite Group: https://www.facebook.com/share/Fv9v3rTqiYC8Apyv/?mibextid=WaXdOe
-
-
Long COVID Canada Facebook Group: the first group created for Long COVID in 2020: https://www.facebook.com/groups/longcovidcanada/
-
Long COVID Kids Canada * : a Facebook group you can join: https://www.facebook.com/groups/longcovidkidscanada/
-
COVID Longue Québec/Quebec Long COVID Facebook Group (in FR and EN): https://www.facebook.com/groups/covidlongueqc/
​
Provincial & Territorial Support Groups
-
A list of provincial and territorial support groups is curated by COVID Long-Haulers:https://www.covidlonghaulcanada.com/support-groups/
International Support Groups
-
Long Covid SOS Charity (UK): https://www.longcovidsos.org
-
Long Covid Support – a UK-based international charity providing support, advocacy and engagement in research: https://www.longcovid.org
-
Long Covid Kids * (global, based in UK) – an international charity providing information, support group, research, etc. You can sign up for a newsletter. There is a Canadian Lead as a member of their team. https://www.longcovidkids.org
-
Long COVID Families (US): https://longcovidfamilies.org/
-
C19 Awareness Recovery (US): https://www.c19recoveryawareness.com
Other Resources: General resources, Return to work, Rehabilitation, and Patient experiences:
-
Government of Canada site with information about post-COVID-19 condition (long COVID): https://www.canada.ca/en/public-health/services/diseases/2019-novel-coronavirus-infection/symptoms/post-covid-19-condition.html
-
British Columbia: The Interdisciplinary Clinical Care Network & Provincial Health Services Authority have produced MyGuide: Long COVID – a customizable guide for people living with Long COVID to inform, equip and empower: https://www.longcovidbc.ca
-
Realize Canada: Support information for people living with HIV and other episodic disabilities – includes a featured document on tips for people living with Long COVID – managing health care interactions, return to work, and disability claims (not valid for QC):
-
Canada Revenue Agency: This resource provides information about how families can apply for the disability tax credit. There is a digital application for medical practitioners (or family) to complete.:
-
Long COVID Physio: an international peer support organization led by physiotherapists with information for professionals and patients: https://longcovid.physio
-
Long COVID Physio: information on fatigue and post-exertional symptom exacerbation (PESE): https://longcovid.physio/post-exertional-symptom-exacerbation
-
Long COVID Physio Video Series: https://longcovid.physio/long-covid-video-series
-
World Physiotherapy: information, support, management, guidance
-
The University of Toronto curates a list of resources for patients and families for COVID and Long COVID: https://guides.hsict.library.utoronto.ca/c.php?g=716817&p=5171775
-
Your Covid Recovery (UK): an NHS England-funded website with public-facing resources. https://www.yourcovidrecovery.nhs.uk/.
-
Phase I is focused on resources, offering helpful advice for specific symptoms, eg, dizziness (https://www.yourcovidrecovery.nhs.uk/covid-in-the-last- 4-weeks/effects-on-your-body/dizziness/). Phase II Your Covid Recovery is a web-based COVID-19 rehabilitation programme with healthcare professional support for those referred into the scheme (usually by a rehabilitation professional).
-
-
Physiotherapy for Breathing Pattern Disorders (UK):a patient-facing site designed and run by specialist physiotherapists: https://www.physio-therapyforbpd.org.uk
-
Cornerstone Physiotherapy (Ontario), June 07, 2023 – practical guidance for employers, with simple tips for supporting employees living with Long COVID: https://cornerstonephysio.com/resources/employers-guide-long-covid/
-
Long Covid Work (UK): a site providing information for people returning to work after Long COVID: https://longcovidwork.co.uk/
-
Long COVID patient experience online module: qualitative research results about long COVID experiences in the UK from the University of Oxford, Health Experiences Research Group: https://healthtalk.org/introduction/long-covid-in-adults/ [a Canadian resource like this will be available Summer 2024]
-
Canadian Lung Association: https://www.lung.ca/lung-health/long-covid
-
Long COVID The Answers (registered corporation in Vancouver): a podcast series about covid produced by Dr. Funmi Okunola, MD through her registered featuring interviews with experts
Books and Reading Materials​
-
The Long COVID Survival Guide by Fiona Lowenstein, afterward by Akiko Iwasaki. Published November 2022 by The Experiment, NY. https://www.fionalowenstein.com/longcovid-survivalguide
-
Clearing the Fog by neuro-psychologist James Jackson.
-
The Long Haul by Ryan Priori- https://www.ryantprior.com/the-long-haul
-
The Long Covid Self Help Guide—written by specialists at a Long COVID clinic offering lay explanations and self-management strategies for the different symptom clusters of long covid. (Specialists at the Post-Covid Clinic Oxford. The long covid self-help guide. Green Tree, 2022.)
-
Support for rehabilitation: self-management after COVID-19 related illness—a World Health Organization guide for patients. (World Health Organization. Support for rehabilitation: self-management after COVID-19-related illness, 2nd ed. WHO: https://www.who.int/europe/publications/i/item/WHO-EURO-2021-855-40590-59892
-
Long Covid Rehabilitation Booklet from NHS Hertfordshire. https://www.hct.nhs.uk/media/4529/long-covid-rehabilitation- booklet-july-2021.pdf
-
University Hospital Network and the University of Toronto Library, Toronto ON – a curated list of resources for patients and families on COVID-19 and long COVID: https://guides.hsict.library.utoronto.ca/c.php?g=716817&p=5171775
-
Infographic – visual summary of LC (downloadable PDF) :
-
Source: Greenhalgh T, Sivan M, Delaney B, Evans R, Milne R. Long covid – an update for primary care. BMJ 2022;378:e072117.
​
Media and News Stories
-
The New York Times (December 14, 2023): 1,374 Days – My Life with Long COVID. By Giorgia Lupi: https://www.nytimes.com/interactive/2023/12/14/opinion/my-life-with-long-covid.html
-
CBC News (December 02, 2023): ‘What I want are recovery narratives’: CBC Radio Host Gill Deacon on life with long COVID. https://www.cbc.ca/news/canada/toronto/gill-deacon-long-covid-recovery-narratives-1.7046731
-
CBC News (June 23, 2023) with Drs. Fahad Razak and Angela Cheung: https://www.theglobeandmail.com/opinion/article-canada-needs-a-long-covid-strategy/
-
USA National Public Radio (NPR) interview with a neuro-psychologist on practical guidance (May 10, 2023): https://www.npr.org/2023/05/08/1174771699/a-practical-guide-for-people-with-long-covid
-
Statnews article (February 16, 2023). The haunting brain science of long COVID. By Wesley Ely: https://www.statnews.com/2023/02/16/the-haunting-brain-science-of-long-covid/
-
Mental Health Commission of Canada – The Catalyst Magazine (February 2023): Pace, Plan, and Prioritize – One Woman’s Story on Coping with Long COVID. By Amber St. Louis. https://mentalhealthcommission.ca/catalyst/pace-plan-and-prioritize-one-womans-story-on-coping-with-long-covid/
-
New York Times article (January 24, 2023). Long Covid is keeping significant numbers of people out of work, study finds. By Pam Belluck: https://www.nytimes.com/2023/01/24/health/long-covid-work.html
-
Scientific article in Nature (published January 13, 2023). Long COVID: major findings, mechanisms, and recommendations. By H Davis, L McCorkell, J Moore Vogel, and E Topol. https://www.nature.com/articles/s41579-022-00846-2
-
LA Times new article (November 16, 2022): How patients wrote ‘the first textbook’ on long COVID. https://www.latimes.com/entertainment-arts/books/story/2022-11-16/how-patients-wrote-the-first-textbook-on-long-covid
-
Podcasts and website by Jackie Baxter, person with Long COVID who provides information about her story, news and others’ experiences (accessed April2024): https://www.longcovidpodcast.com/
-
Voices of Long COVID – a podcast by Noelle: https://voicesoflongcovid.buzzsprout.com/
-
​
The PEM Guide (accessed June 2024). An 8-page guide for others managing fatigue and post-exertional malaise (PEM) based on personal experience of living with Long Covid, by Adriana Patino, Lead for Long Covid Canada Group:
https://docs.google.com/document/d/1BTvIScUVeHoPXLadij1HoF_r4ODo9BfhkJ-zP0sDx0Y/edit
​
Health Experiences.ca: a collection of stories from a series of in-depth interviews with Canadians about their experience of a particular illness or health-related issue.
Opportunities to participate in clinical trials about effective treatments
Long Covid Studies: a web platform about current clinical trials and how to participate: https://longcovidstudies.net/
​
This resource was developed by a patient with lived experience of LC to simplify access to information about clinical trials and how to enroll in relevant studies. Click on the link above to explore the current list of trials.
The information on this site draws from the two major clinical trials databases that include all registered Canadian trials: www.clinicaltrials.gov and https://health-products.canada.ca/ctdb-bdec/?lang=eng
​
Support and information on how to be a patient advisor or co-researcher
There are several resources and training programs available to help support people with lived experience getting involved with research and quality improvement projects. See for example:
REACH BC: An online centralized intake and matching initiative to support involvement in BC research. People in BC with or without medical conditions can sign up and be linked to research initiatives as a research participant and/or to become a patient partner in research: https://reachbc.ca
Patient Voices Network, BC: Patients are encouraged to join this network to support engagement in healthcare improvement initiatives and find out about learning opportunities: https://patientvoicesbc.ca/patient-partners/
Patient, Caregiver and Community Engagement Learning Series: The following series of seven webinars were developed to help support connections and competencies for engagement with the work of the Ontario Health Teams. It was developed by Dr. Kerry Kuluski’s research team at Trillium Health Partners in collaboration with patients, caregivers and members of the community. It is available as an online self-guided resource: https://www.instituteforbetterhealth.com/portfolio-items/patient-caregiver-and-community-engagement-learning-series/
​
Ontario Health Teams: It was developed by Dr. Kerry Kuluski’s research team at Trillium Health Partners in collaboration with patients, caregivers and members of the community. It is available as an online self-guided resource: https://www.instituteforbetterhealth.com/portfolio-items/patient-caregiver-and-community-engagement-learning-series/
Alberta Patient and Community Engagement Research (PaCER) program: people with lived experience can obtain a certificate in patient and community engagement research through a training program run by the University of Calgary to help prepare them to be a co-researcher: https://www.ucalgary.ca/patient-community-engagement-research
Ontario SPOR Support Unit (OSSU) has a list of several training initiatives to support patient and researcher partnerships in research. See: https://ossu.ca/resources/resources-training/
Health Experiences Research Canada program, led by Dr. Susan Law, has a module on patient-researcher partnerships where people can listen to others’ experiences: https://healthexperiences.ca/patient-researcher-partnerships/
Virtual Nano Course on Enabling Learning Health Systems: a virtual 90-minute course for patients, researchers, and health system leaders involved in building learning health systems in Ontario. To register: https://surveys.mcmaster.ca/limesurvey/index.php/963273