Patient Advisory Council
The Patient Advisory Council (PAC) at Long COVID Web (LCW) brings together individuals with lived experience of Long COVID to ensure that patient voices remain at the heart of everything we do.
Their insights help shape research priorities and educational resources, ensuring that the work of LCW reflects the real challenges and needs of the Long COVID community. Through collaboration, storytelling, and shared leadership, the PAC helps drive meaningful change in how Long COVID is understood, researched, and addressed across all LCW initiatives.
Objectives
How to Get Involved
Joining the LCW Patient Advisory Council (PAC) is a meaningful way to share your lived experience and help guide how Long COVID results are used across healthcare, social, and patient support areas, and contribute to research about Long COVID and how the results are shared.
Why Join the PAC
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Help advance Long COVID healthcare research
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Share your experiences to influence research and knowledge mobilization
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Ensure patient perspectives are represented in advising research
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Collaborate with researchers, clinicians, and other stakeholders
Eligibility to Join
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Have lived experience of Long COVID or be a caregiver
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Be able to attend regular virtual meetings
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Be committed to respectful collaboration
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Reside in Canada
Key Responsibilities and Commitments
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PAC meets for one hour every two weeks via Zoom, with flexibility to accommodate members
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Share perspectives and feedback on research priorities and materials
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Collaborate respectfully with researchers and other council members
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PAC Applications for the 2025-2026 cycle are now closed.
We thank you for your interest. Please check next year, June 2026.
Past and Ongoing Contributions to LCW
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Contributing to knowledge translation, grant proposals, and survey development, and planning upcoming Patient Forums.
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Offering key input into national Long COVID care guidelines, reviewing research materials, identifying research priorities, and contributing to funding applications.
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Represent patient voices at LCW Committee meetings and support equitable, patient-driven research.​
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PWLE helped name LCW and revised its code of conduct to highlight inclusion and respectful behaviour.
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PAC influences research-patient collaboration and key network decisions.
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PAC provides input on LCW website design and content.