Ressources
Canadian Government Resources on Long COVID
The following is a curated list of selected evidence-based resources prepared by LCW scientists and patient partners with information relevant to Canadians, researchers, healthcare professionals, patients and caregivers, and decision makers. We have also created a more specific listing of trusted resources for patients and families.
Office of the Chief Science Advisor (OCSA)
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Federal Task Force on Post-Covid-19 Condition: https://science.gc.ca/site/science/en/office-chief-science-advisor/initiatives-covid-19
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Pre-report (December 2022): https://science.gc.ca/site/science/en/office-chief-science-advisor/initiatives-covid-19/post-covid-19-condition-canada-what-we-know-what-we-dont-know-and-framework-action-pre-report
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Final report (January 2023): Framework for Action: https://science.gc.ca/site/science/en/office-chief-science-advisor/initiatives-covid-19/post-covid-19-condition-canada-what-we-know-what-we-dont-know-and-framework-action
Statistics Canada
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Canadian COVID-19 Antibody and Health Survey (CCAHS): https://health-infobase.canada.ca/covid-19/post-covid-condition/ - see series of reports 2022-23.
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Third report of CCAHS (December 2023): Experiences of Canadians with long-term symptoms following COVID-19: https://www150.statcan.gc.ca/n1/daily-quotidien/231208/dq231208a-eng.htm
Canadian Agency for Drugs & Technology in Health (CADTH)
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Post COVID Condition ‘bundle’ of research summaries, guidance and environmental scan of clinics (February 2023): https://www.cadth.ca/evidence-post-covid-19-condition
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Public Health Agency of Canada: https://www.canada.ca/en/public-health/services/diseases/2019-novel-coronavirus-infection/symptoms/post-covid-19-condition.html
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Selected International Resources
World Health Organization (WHO)
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Questions and answers https://www.who.int/news-room/questions-and-answers/item/coronavirus-disease-(covid-19)-post-covid-19-condition
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Fact sheets (infographics) – 2022-2023: https://who.canto.global/v/JJA37JMFLT/album/S5ERC?viewIndex=0&gOrderProp=uploadDate&gSortingForward=false&referenceTo=&from=fitView&display=fitView
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Resources page including case definition, living rehab guidance, publications and webinars: https://www.who.int/teams/health-care-readiness/post-covid-19-condition
UK National Health Service:
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General information and links to resources: https://www.england.nhs.uk/coronavirus/post-covid-syndrome-long-covid/#:~:text=Emerging%20evidence%20and%20patient%20testimony,fog”%2C%20anxiety%20and%20stress.
Office for National Statistics (UK):
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Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 30 March 2023: https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases/bulletins/prevalenceofongoingsymptomsfollowingcoronaviruscovid19infectionintheuk/30march2023
Alberta:
Government of Alberta Personal Health Portal: Long COVID Care Instructions:
Alberta Health Services: Long COVID Information and Resources:
British Columbia:
Provincial Health Services Authority: Living with Post-COVID Symptoms:
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Interdisciplinary Clinical Care Network:
Manitoba:
Shared health Manitoba
New Brunswick:
Government of New Brunswick
Newfoundland:
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Nova Scotia:
Nova Scotia Health
Ontario:
Ontario College of Family Physicians:
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Ontario Health:
Prince Edward Island:
Government of Prince Edward Island:
Quebec:
Government of Quebec:
Saskatchewan:
Saskatchewan Health Authority:
Yukon Territory:
Government of Yukon:
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Northwest Territories: (There is currently no published plan from the Northwest Territories provincial government)​
Nunavut: (There is currently no published plan from the Nunavut provincial government)​
Canadian
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Government of Canada site with information about post-COVID-19 condition (long COVID): https://www.canada.ca/en/public-health/services/diseases/2019-novel-coronavirus-infection/symptoms/post-covid-19-condition.html
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Canadian Lung Association: https://www.lung.ca/lung-health/long-covid
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Canadian Guidelines for Post-COVID Condition (CAN-PCC): https://canpcc.recmap.org/recommendation
International​
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Long COVID Physio – an international peer support organization led by physiotherapists: https://longcovid.physio
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Your Covid Recovery (https://www.yourcovidrecovery.nhs.uk/) is an NHS England-funded website with public-facing (Phase I) resources. These offer helpful advice for specific symptoms, eg, dizziness (https://www.yourcovidrecovery.nhs.uk/covid-in-the-last- 4-weeks/effects-on-your-body/dizziness/). Phase II Your Covid Recovery is a web-based COVID-19 rehabilitation programme with healthcare professional support for those referred into the scheme (usually by a rehabilitation professional)
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Physiotherapy for Breathing Pattern Disorders (https://www.physio-therapyforbpd.org.uk)—a patient-facing site designed and run by specialist physiotherapists
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Long Covid Work (https://longcovidwork.co.uk/)—a site for people returning to work after long covid.
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Long COVID patient experience: qualitative research results from the University of Oxford, Health Experiences Research Group: https://healthtalk.org/introduction/long-covid-in-adults
World Health Organization (WHO)
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Questions and answers: https://www.who.int/news-room/questions-and-answers/item/coronavirus-disease-(covid-19)-post-covid-19-condition
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Fact sheets (infographics) – 2022-2023: https://who.canto.global/v/JJA37JMFLT/album/S5ERC?viewIndex=0&gOrderProp=uploadDate&gSortingForward=false&referenceTo=&from=fitView&display=fitView
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Resources page including case definition, living rehab guidance, publications and webinars: https://www.who.int/teams/health-care-readiness/post-covid-19-condition
UK National Health Service:
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General information and links to resources: https://www.england.nhs.uk/coronavirus/post-covid-syndrome-long-covid/#:~:text=Emerging%20evidence%20and%20patient%20testimony,fog”%2C%20anxiety%20and%20stress.
Office for National Statistics (UK):
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Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 30 March 2023: https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases/bulletins/prevalenceofongoingsymptomsfollowingcoronaviruscovid19infectionintheuk/30march2023
Canadian Sources
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CANPCC – Public Health Agency of Canada has funded the McMaster GUIDE group and Cochrane Canada to develop, disseminate and evaluate six evidence-based guidelines on post-COVID-19 condition. Good practice statements released in January 2024: https://canpcc.ca/guidelines/
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Guidelines are currently in development
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Ontario Health – Guidance for Primary Care (December 2022): https://www.ontariohealth.ca/sites/ontariohealth/files/2021-12/PostCovidConditionsClinicalGuidance_EN.pdf
International Sources​
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UK National Institute for Health and Care Excellence: Clinical guidelines for managing long-term effects of COVID-19 (last updated November 2021): https://www.nice.org.uk/guidance/ng188
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Faculty of Occupational Medicine guidance for health professional on return to work for patients with post-covid syndrome. https://www.fom.ac.uk/wp-content/uploads/FOM-Guidance-post- COVID_healthcare-professionals.pdf
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Society of Occupational Medicine’s covid-19 return to work guide for recovering workers. https://www.som.org.uk/COVID-19_re- turn_to_work_guide_for_recovering_workers.pdf
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NICE guideline on chronic pain.
Realize Canada (a national charitable organization supporting people living with HIV and episodic disabilities providing evidence-based guidance):
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Return to work guidance for managing health care interactions and navigating disability benefits for LC patients: https://www.realizecanada.org/wp-content/uploads/TipsForManagingHealthCare-EN.pdf
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Roadmap for disability income benefits for people with LC: https://www.realizecanada.org/wp-content/uploads/RoadmapForDisabilityIncome-LongCOVID-EN.pdf
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International
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Long term effects of covid-19 and post-covid-19 syndrome: an e-learning resource from the UK Royal College of General Practitioners. https://elearning.rcgp.org.uk/course/view.php?id=492
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Health Education England long covid e-learning modules for health professionals. https://www.e-lfh.org.uk/programmes/long-covid/
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Bateman Horne Center: https://batemanhornecenter.org
NIH Clinical Trials Database (includes trials in the US and over 200 countries – sponsors or investigators submit and update information):
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You can search using the term ‘long covid’ which will include the following terms: post-acute COVID-19 syndrome; post-acute sequelae of SARS-CoV-2 infection; Post-Acute Sequelae of COVID-19; Long COVID-19 Syndrome; persistent COVID-19; long haul COVID; post-acute COVID syndrome; chronic COVID syndrome; long hauler COVID; Post-acute sequela of COVID-19
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468 studies (28 identify as in Canada if selected for ‘Location’ filter) listed as at Jan30-2024 – includes studies active (recruiting or not) and non-active
Health Canada Clinical Trials Database:
International
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Long term effects of covid-19 and post-covid-19 syndrome: an e-learning resource from the UK Royal College of General Practitioners. https://elearning.rcgp.org.uk/course/view.php?id=492
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Health Education England long covid e-learning modules for health professionals. https://www.e-lfh.org.uk/programmes/long-covid/
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Bateman Horne Center: https://batemanhornecenter.org