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Patient Advisory Council

The PAC was established in 2023 as a core advisory group within the Long COVID Web (LCW) network, to ensure patient voices shape research, care, and knowledge mobilization across Canada. 

Core values: Patient-centered, inclusive, transparent, collaborative, equitable, and respectful of diverse lived experiences. 
Overview: The PAC represents people living with Long COVID and their caregivers from across Canada, working with researchers, clinicians, and policy makers to improve health outcomes. 

How to Get Involved

Joining the LCW Patient Advisory Council (PAC) is a meaningful way to actively contribute to improving Long COVID healthcare and research. PAC members bring invaluable lived experience and perspectives to the table, helping ensure research and policy truly reflect patient needs.

Why Join the PAC

  • Support  Long COVID healthcare research and strategy 

  • Share experiences to shape policies, resources, and funding decisions 

  • Network with peers, researchers, and clinicians 

Eligibility to Join

  • Must have lived experience with long COVID or be a caregiver 

  • Reside in Canada 

  • Able to attend virtual meetings regularly 

  • Commitment to equity, diversity, inclusion, and respectful collaboration 

  • Sign and follow LCW’s Code of Conduct

Meetings:

  • PAC meets bi-weekly via Zoom (with flexibility for members’ health needs). 

  • Meetings are typically 1 hour; recordings are available for members. 

  • Opportunities exist to join other LCW working groups or special projects. 

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PAC Applications for 2025-2026 cycle are now closed.

We thank you for your interest. Please check next year June 2026

Goals and Objectives

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Frequently Asked Questions

Contributions

  •  Input on knowledge translation, grant proposals, and survey development. Planning upcoming Patient Forum. 

  • Key input into national long COVID care guidelines, reviewing research materials, identifying research priorities, and contributing to funding applications. 

  • Represent patient voices, advise the Steering Committee, and support equitable, patient-driven research.

  • PWLE helped name LCW and revised its code of conduct to highlight inclusion and respectful behaviour.

  • PAC influenced research-patient collaboration and key network decisions.

  • Provided input on LCW website design and content

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